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 The
American Pain Foundation is a leading nonprofit organization devoted exclusively
to serving the needs of people with pain through information, education and
policy advocacy. Our mission is to improve the quality of life for people with
pain by raising public awareness, providing practical information, promoting
research, and advocating to remove barriers and increase access to effective
pain management.
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APS
is a multidisciplinary organization of scientists, clinicians, and analysts
that advances pain-related research and treatment.
, Pain: The Fifth Vital Sign [HTML]
- Summary: The APS advocates here that pain should be assessed by physicians
as the fifth vital sign, and that it should be recorded in the patient’s
charts along with pulse, blood pressure, core temperature and respiration.
., Treatment of Pain at the End of Life: A Position Statement
from the American Pain Society, APS Bulletin, Jan.-Feb. 1997 [HTML]
- Summary: This position statement notes that the substandard treatment
of pain is due in part to clinicians’ emphasis on the medical model of treatment,
rather than on palliation of pain. The statement notes that pain should be charted
as a vital sign so that changes in a patient’s level of pain may be promptly
relieved.
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Americans
for Better Care of the Dying is a charity organization, made up of citizens
and professionals, that supports reform in medicine and policy in order improve
the care provided to terminally ill patients. Their website provides information
on their activities and current national news surrounding care of the dying.
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The
American Hospice Foundation is the voice of those who face life-limiting illness
and significant loss. The foundation advances the hospice concept of care and
promotes hospices that seek to meet growing and complex needs. By forging new
partnerships at the local and national levels, the foundation ensures the availability
of hospice care for many who might otherwise fall through widening gaps.
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The
Hemlock Society seeks to maximize end-of-life options by providing advocacy,
education, and consultation/information services to those who believe in the
right to control one's own death. Their website contains information about their
services and provides legislative information and news surrounding the debate
over euthanasia.
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Last
Acts is an action campaign with the goal of improving end-of-life care. They
distribute an email newsletter and present updates on issues of death and dying.
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The
Lindesmith Center is an drug policy research center that hosts seminars and
publishes books on drug policy reform. On their website you can learn about
their products and current programs, and you can search their library.
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Council
is the umbrella and representative body for hospice and palliative care in England,
Wales and Northern Ireland. Its webpage contains information on UK-based hospices
and educational resources for palliative care.
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The
National Hospice and Palliative Care Organization is the largest nonprofit membership
organization representing hospice and palliative care programs and professionals
in the United States. It advocates for the terminally ill and their families,
as well as providing educational programs on care for the dying. Their site
allows you to find a hospice and contact state hospice organizations.
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Partners
Against Pain is a website that provides information to healthcare professionals
and the public about managing pain. On their website you can find information
pain control, pertinent publications and support groups for those in pain. Partners
Against Pain is part of the Purdue Pharma L.P. [HTML]
group of web sites. Purdue manufactures OxyContin.
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Partnership
for Caring: America’s Voices for the Dying is a coalition of individual
consumers, consumer organizations, health care professionals and health care
organizations advocating for needed changes in professional and public policy
and health care systems to improve care for dying persons and their families.
Their website offers information on living wills, medical powers of attorney,
and advance directives.
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Grass-roots
organization of health care professionals, dedicated to five main areas of service:
Public, patient and physician education, and regulatory updates and making pain
management a priority in the practice of medicine.
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